miércoles, 12 de diciembre de 2012


Como ves, un video muy ambicioso en el que se puede ver el "flashmob" realizado el pasado 1 de diciembre por Walk on Project en en el centro de Bilbao, en donde participaron más de 140 personas (Entre cantantes, bailarines, orquesta, coro... Por supuesto, allí estuvo tb Mikel Rentería, padre de Jontxu). El objetivo de esta iniciativa es concienciar sobre la enfermedades "raras" y recaudar fondos para el estudio de las mismas. En 2012 WOP ha logrado destinar 160.000 euros a dos proyectos científicos de excelencia y referencia internacional que actualmente trabajan en la búsqueda de terapias y fármacos que logren curar los daños que causan este tipo de patologías neurodegenerativas. La asociación The Walk On Project (WOP) surge de una historia familiar. De un golpe que te da la vida y que se afronta con esperanza y lucha; que se intenta convertir en energía positiva. Mikel y Mentxu tienen tres hijos. Al mediano, Jon, le diagnosticaron una enfermedad poco común : Adrenoleucodistrofia: una enfermedad cruel y degenerativa. La familia comenzó su lucha y logró salvar la vida de Jon gracias a un trasplante de médula. Su hermana pequeña, María, era donante idéntica. Logran frenar la enfermedad, aunque para entonces ya había hecho mucho daño a las capacidades motrices y neuronales de Jon, que ya ha cumplido nueve años.

10 comentarios:

susana dijo...

Me gusta mucho éste flashmob, ¡ay!..
hay tantas historias que todo es poco.
Un abrazo y merci.

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